Analiza i Egzystencja

ISSN: 1734-9923     eISSN: 2300-7621     DOI: 10.18276/aie.2015.32-03
CC BY-SA   Open Access   DOAJ  CEEOL  DOAJ

Lista wydań / 32 (2015)
Niedyrektywność w poradnictwie genetycznym dotyczącym decyzji reprodukcyjnych

Rok wydania:2015
Liczba stron:21 (71-91)
Słowa kluczowe: autonomia poradnictwo genetyczne niedyrektywność bioetyka decyzja reprodukcyjna
Cited-by (Crossref) ?:
Autorzy: Olga Dryla
Uniwersytet Jagielloński

Abstrakt

Nondirectiveness is almost universally recognized as the most defining feature of genetic counseling and adherence to a nondirective approach is the generally required and professed standard; there is no widely accepted definition of nondirectiveness yet. Although the principle of nondirectiveness is still poorly understood, its importance is widely discussed and sometimes questioned. The current article tries to elaborate – by analyzing different descriptions and interpretations of nondirective approach – a theoretically consistent and practically operational concept of nondirectiveness in genetic counseling concerning reproductive choices.
Pobierz plik

Plik artykułu

Bibliografia

1.Baker D.L., Schuette J.L., Uhlmann W.R. (red.) (1998), A Guide to Genetic Coun- seling, New York: Wiley-Liss Inc.
2.Bartels D.M., LeRoy B.S., Caplan A.L. (eds.) (1993), Prescribing our Future. Ethical Challenges in Genetic Counseling, New York: Aldine de Gruyter.
3.Bartels D.M., LeRoy B.S., McCarthy P., Caplan A.L. (1997), Nondirectiveness in Genetic Counseling: A Survey of Practitioners, „American Journal of Medical Genetics” Vol. 72, s. 172– 179.
4.Beauchamp T.L., Childress J.F. (1996), Zasady etyki medycznej, tłum. W. Jałcórzyński, Warszawa: Książka i Wiedza.
5.Brunger F., Lippman A. (1995), Resistance and Adherence to the norms of Genetic Counseling, „Journal of Genetic Counseling”, Vol. 4, No. 3, s. 151–167.
6.Clarke A. (1991), Is Non-Directive Genetic Counselling Possible?, „Lancet”, Vol. 338, s. 998–1001.
7.Czeizel A., Métneki J., Osztovics M. (1981), Evaluation of Information-guidance Genetic Counselling, „Journal of Medical Genetics” Vol. 18, s. 91–98.
8.Fine B.A. (1993), The Evolution of Nondirectiveness in Genetic Counseling and Implications of the Human Genome Project, [w:] D.M. Bartels, B.S. LeRoy, A.L. Caplan (red.), Prescribing our Future. Ethical Challenges in Genetic Counseling, New York: Aldine de Gruyter, s.101–119.
9.Grandstrand Gervais K. (1993), Objectivity, Value Neutrality, and Nondirectiveness in Genetic Counseling, [w:] D.M. Bartels, B.S. LeRoy, A.L. Caplan (red.), Prescribing our Future. Ethical Challenges in Genetic Counseling, New York: Aldine de Gruyter, s. 119–131.
10.Kessler S. (1992), Psychological Aspects of Genetic Counseling. VII. Thoughts on Directiveness, „Journal of Genetic Counseling”, Vol. 1, No. 1, s. 9–17.
11.Kessler S. (1997), Genetic Counseling Is Directive? Look Again, „American Journal of Human Genetic” Vol. 61, s. 466–467.
12.Kessler S. (1997), Psychological Aspects of Genetic Counseling. XI. Nondirective- ness Revisited, „American Journal of Medical Genetics” Vol. 72, s. 164–171.
13.LeRoy B.S. (1993), When Theory Meets Practice: Challenges to the Field of Genetic Counseling, [w:] D.M. Bartels, B.S. LeRoy, A.L. Caplan (red.), Prescribing our Future. Ethical Challenges in Genetic Counseling, New York: Aldine de Gruyter, s. 39–57.
14.Lippman A., Wilfond B.S. (1992), Twice-told Tales: Stories about Genetic Disorders, „American Journal of human Genetics” Vol. 51, s. 936–937.
15.Marks J.H. (1993), The Training of Genetic Counselors: Origins of a Psychoso- cial Model, [w:] D.M. Bartels, B.S. LeRoy, A.L. Caplan (eds.), Prescribing our Future. Ethical Challenges in Genetic Counseling, New York: Aldine de Gruyter, s. 15–25.
16.Oduncu F.S. (2002), The Role of Non-Directiveness in Genetic Counseling, „Medi- cine, Health Care and Philosophy” Vol. 5, s. 53–63.
17.Pencarinaha D.F., Bell N.K., Edwards J.G., Best R.G. (1992), Ethical Issues in Ge- netic Counseling: A Comparison of M.S. Counselor and Medical Geneticist Perspectives, „Journal of Genetic Counseling”, Vol. 1, No. 1, s. 19–30.
18.Seller M.J. (1982), Ethical Aspects of Genetic Counselling, „Journal of Medical Ethics” Vol. 8, s. 185–188.
19.Terrell White M. (1997), “Respect for Autonomy” in Genetic Counseling: an Analysis and a Proposal, „Journal of Genetic Counseling”, Vol. 6, No. 3, s. 297–313.
20.Weil J. (2003), Psychological Genetic Counseling in the Post-Nondirective Era: A Point of View, „Journal of Genetic Counseling”, Vol. 12, No. 3, s. 199–211.
21.Wolff G., Jung Ch. (1995), Nondirectiveness and Genetic Counseling, „Journal of Genetic Counseling”, Vol. 4, No. 1, s. 3–25.
22.Yarborough M., Scott J.A., Dixon L.K. (1989), The Role of Bene cence in Clinical Genetics: Non-Directive Counseling Reconsidered, „Theoretical Medicine” Vol. 10, s. 139–149.